Disability Visibility: First-Person Stories from the Twenty-First Century

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difficulty in going up or down steps, stairs or gradients; for example, because movements are painful, fatiguing or restricted in some way Okoro, Catherine A. (2018). "Prevalence of Disabilities and Health Care Access by Disability Status and Type Among Adults — United States, 2016". MMWR. Morbidity and Mortality Weekly Report. 67 (32): 882–887. doi: 10.15585/mmwr.mm6732a3. ISSN 0149-2195. PMC 6095650. PMID 30114005. B21. The Act provides for a person with one of the progressive conditions of cancer, HIV and multiple sclerosis to be a disabled person from the point at which they have that condition, so effectively from diagnosis. ( See paragraph A9.) If you’re not sure how long your impairment will last you should try to get advice from your doctor or a health professional. If your symptoms come and go Throughout the guidance, descriptions of statutory provisions in the legislation are immediately preceded by bold text and followed by a reference to the relevant provision of the Act or to regulations made under the Act. References to sections of the Act are marked ‘S’; references to schedules are marked ‘Sch’; and references to paragraphs in schedules are marked ‘Para’. Other references to ‘disability’

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B16. Account should be taken of where the effect of the continuing medical treatment is to create a permanent improvement rather than a temporary improvement. It is necessary to consider whether, as a consequence of the treatment, the impairment would cease to have a substantial adverse effect. For example, a person who develops pneumonia may be admitted to hospital for treatment including a course of antibiotics. This cures the impairment and no substantial effects remain. ( See also paragraph C11, regarding medical or other treatment that permanently reduces or removes the effects of an impairment.)the long-term substantial adverse effects must be effects on normal day-to-day activities ( see Section D) inability to hold a conversation in a very noisy place, such as a factory floor, a pop concert, sporting event or alongside a busy main road

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whether adverse effects of a progressive condition will become substantial ( Sch1, Para 8, see also paragraphs B18 to B23), or

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Whether a person satisfies the definition of a disabled person for the purposes of the Act will depend upon the full circumstances of the case. That is, whether the substantial adverse effect of the impairment on normal day- to-day activities is long term. A woman is obese. Her obesity in itself is not an impairment, but it causes breathing and mobility difficulties which substantially adversely affect her ability to walk. D12. In the Appendix, examples are given of circumstances where it would be reasonable to regard the adverse effect on the ability to carry out a normal day-to-day activity as substantial. In addition, examples are given of circumstances where it would not be reasonable to regard the effect as substantial. In these examples, the effect described should be thought of as if it were the only effect of the impairment.

Disability Visibility Quotes by Alice Wong - Goodreads Disability Visibility Quotes by Alice Wong - Goodreads

This section should not be read in isolation but must be considered together with sections A, C and D. Whether a person satisfies the definition of a disabled person for the purposes of the Act will depend upon the full circumstances of the case. That is, whether the adverse effect of the person’s impairment on the carrying out of normal day-to- day activities is substantial and long term. Meaning of ‘substantial adverse effect’ My friends pass around a blunt and ask me what age I started smoking. And, if the water where I grew up in northern New Jersey really is different. D11. This section provides guidance on what should be taken into account in deciding whether a person’s ability to carry out normal day-to- day activities might be restricted by the effects of that person’s impairment. The examples given are purely illustrative and should not in any way be considered as a prescriptive or exhaustive list.

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This has a substantial adverse effect on his ability to carry out the normal day-to-day activity of crossing the road safely. behaviour which challenges people around the person, making it difficult for the person to be accepted in public places

DISABILITY VISIBILITY is an urgent collection of contemporary DISABILITY VISIBILITY is an urgent collection of contemporary

where the total period for which it lasts, from the time of the first onset, is likely to be at least 12 months, or The Act generally defines a disabled person as a person with a disability. A person has a disability for the purposes of the Act if he or she has a physical or mental impairment and the impairment has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities. Therefore, the general definition of disability has a number of elements. The Guidance covers each of these elements in turn. Each section contains an explanation of the relevant provisions of the Act which supplement the basic definition. Guidance and illustrative examples are provided where relevant. Those using this Guidance for the first time should read it all, as each part of the Guidance builds upon the part(s) preceding it. It is important not to consider any individual element in isolation. A15. Disfigurements which consist of a tattoo (which has not been removed), non-medical body piercing, or something attached through such piercing, are to be treated as not having a substantial adverse effect on the person’s ability to carry out normal day-to-day activities. [footnote 3] ( See also paragraphs B24 to B26.) People who have had a disability in the past B17. However, if a person receives treatment which cures a condition that would otherwise meet the definition of a disability, the person would be protected by the Act as a person who had a disability in the past. ( See paragraph A16.) Progressive conditions

Esmé Weijun Wang writes in The Collected Schizophrenias about speaking to medical professionals about her experiences with schizophrenia. A doctor approached her to thank her afterward, but what she said shows how many able-bodied people don’t treat or see disabled people as human: She said that she was grateful for this reminder that her patients are human too. She starts out with such hope, she said, every time a new patient comes—and then they relapse and return, relapse and return. The clients, or patients, exhibit their illness in ways that prevent them from seeming like people who can dream, or like people who can have others dream for them. Disabled voices like Wang’s and others are needed to change the narratives around disability—to insist on disabled people’s humanity and complexity, to resist inspiration porn, to challenge the binary that says disabled bodies and lives are less important or tragic or that they have value only if they can be fixed or be cured or be made productive.” The Disability Visibility Project ( DVP) is an online community dedicated to creating, recording, sharing, and amplifying disability media, stories, and culture. [1] DVP is a community partnership with StoryCorps, an American oral history organization dedicated to preserving and sharing stories through interviews. [2] Interviews recorded with StoryCorps are archived at the American Folklife Center at the Library of Congress with the permission of the interviewer. [3] [4] The DVP platform consists mainly of blog posts and podcast episodes, but also creates disabled media from collected oral histories in the form of tweets, radio stories, audio clips, images, etc. [5] [6] History [ edit ]